Showing posts with label living with elderly parents. Show all posts
Showing posts with label living with elderly parents. Show all posts

Thursday, May 17, 2018

live-in aged care: our journey so far...


I'm in the trenches every day, first hand witness to the decline and change in my parents, something many people prefer not to witness when it comes to their elderly relations. I'm not here to condemn anyone who decides that living with their aging parents is not for them - there are many reasons why its a wonderful thing to do and many more reasons why its probably not the greatest idea in the world.

I wrote about role reversals in the parent child relationship in the post Every day is Freaky Friday and one of the greatest changes you'll note, besides the increasing feelings or protectiveness you have over your parents (its like having the world's oldest children "don't touch! hot! Don't climb on the shelves to reach something! Put the axe down now....") is that while they once monitored and assessed your development, you are now constantly appraising their declining abilities. The social niceties can be the first to go. Table manners of course fall by the wayside. The ability to assess what is and is not interesting, what is and is not important, and they probably lost their memory 30 years ago we just weren't there to observe its departure.

The constant losing of keys is one of my great stresses, its mostly Dad, but this one time with Mum last year was particularly stressful, here is my Facebook post from that night:  hello Barkeep, I need copious amounts of alkyhol, I know you don't know me, that's because I don't usually drink. And I don't care what you bring me I just need to blot out that my 80 year old mother lost her keys half way through locking the house up, and whatever can obliterate the screaming as my mother tries to explain (for the one billionth time) to my Dad that the keys are not out the front or in the garage she's quite sure because she locked the front door and then lost the key, and the door is locked so the key has to be on this side of the door, and he can't grasp it.... and whatever you recommend that will erase this I will take immediately, and more.

But mum is still going on very strong, at 80 she actually can still wield a hack saw out in the garden for a couple of hours at a time, and I don't usually know she's at it until she's dragging the corpses of tree branches into the back yard for disposal by me.

Dad was the handiest guy in the world. He could design and make anything, he could repair anything, and was genius at substitutions for broken or missing parts. Somewhere along the way of course, certain jobs become physically too hard - not that he can admit it, and I'm still fighting a losing battle of stopping him from doing things he really shouldn't do. Just the other day he asked me where the little saw was he could use to cut up some hard roots invading the garden drain. Yes, at 85 years old, previously had two heart valves replaced, got dodgy knees, and a previously broken hip he wanted to get down on hands and knees and hack away at something. Its now at the point where I don't want him to do things anymore, that's to be expected, right? But now I can't even consult with him over how I should do things.

How I discovered this? Well, and this just came up in my Facebook memories from a few years ago, I wrote at the time: My Dad is making an adjustment to my furniture. This involves taking it apart, reassembling it with glue on the screws, dowels and bolts, and adding some support brackets.... but why has he come inside for a box of matches? I am so afraid to ask. Please don't burn my furniture Dad!

That would be about the last time I asked Dad for a favour. I actually sneak around now when I need to assemble something, or book a friend in to help me if I think I can't figure it out on my own.

Of course I'm here to basically do favours for my parents, that would be the service I provide them in return for economical living and a permanent address. Mum just comes straight out and asks me for things, and that is wonderful. Dad asks me in a way that arouses the most fear and dread possible. In the time it takes Dad to get to the point and ask me for a favour, which begins with "can I ask you a favour?" (and then descends into a rambling stroll through the Valley of the Shadow of Death) the sun has shifted significantly in the sky, I have imagined 50 things I hope he's not about to ask me, and a new billy goat hair has sprouted out of his ear. All to ask me if I have change for a fiver.

And those niceties, the little social graces, the supportive parenting statements.... its safe to say those are gone. Not long ago I was showing my mother some new photos of myself, they were nice photos taken so I'd have something to use if someone asked me for one for an article or a feature, of course Dad wanted to be included and asked to see them too. No problem, here you go, Dad.... "you've turned ugly!" he exclaims in horror. WTF? If those photos are ugly there is no hope for me as I am with no makeup and my hair not done the way he sees me every day. Stings a little, coming from my Dad. Oh wait.... he's got massive cataracts and he's not wearing his glasses. Crisis averted. "You can't see properly!" I exclaim "you're not wearing your glasses and you've got cataracts". Oh be fucked, that was the wrong thing to say he flung the photos down and screamed "don't show me anymore pictures then!". And he's the injured party. I won't lie, I was pretty upset after that. Not that he noticed.

And that's why I say that aged care is not for sissies. You just have to get out of bed every day and hide the damn hack saw.




Friday, January 13, 2017

the state of the union

If you're wondering how we are getting along.... well you see, its like this:

Daily serious ruffling of the feathers, with intermittent outbreaks of fire, some passive aggression, the occasional bonding over dessert or a joke (at someone else's expense) and then we rupture over some other issue and it all starts again the next day.

Sadly it seems like a lot of our suffering has come from Dad not being diagnosed for Parkinson's and therefore having absolutely no assistance for his mental and emotional decline related to that over the past 15 years. Meaning, Mum and I cop the brunt of his depression, anxiety, low self esteem, and the fact that he can't hear us doesn't stop him from screaming "fucking shut up" at us like a total savage when we are not in fact having a go at him and might actually be discussing our shared loathing of Pokemon Go, or our Liberal government (state or federal, you pick).

My parents who probably should have been divorced in the mid 1980's will be married 42 years in March. People always say they stay together for the kids, in our case I think to torture the kid, but what can you do? They think they are a great couple. They say the nastiest and most juvenile things to each other multiple times a day before settling down to hold hands in front of the tv every evening, so go figure.

The house is starting to show its age. The windows sound like car crashes when you close them (its like screeching tyres followed by a loud impact). I did not get the lock fixed on the bathroom for my birthday and am still showering in a state of constant alert. My toilet was starting to have difficulty flushing on half flush, so my Dad, determined to fix it, rendered it more broken than ever before so that we can only use the full flush. He talks about having another go at it, and I'm afraid I'll end up with a totally broken toilet. Won't that be nice!

There aren't enough power outlets in the kitchen. There's not enough bench space in the kitchen. There's a seriously dodgy corner pantry (that is not a walk in, and you literally have to poke your arm in blindly to the far corners and hope you get what you want without smashing anything made of glass) and my excess food is stored in a cupboard in my office but at least with the dog bed being pushed hard up against those doors at night I'm pretty sure mice will never get in to raid.

I constantly find disembodied band aids in the bathroom, kitchen, and laundry. Usually soggy, dirty looking things. The floor around the dining table is usually good for a used toothpick or two. The dog licks the carpet hoping for cheese and bread crumbs, but cereal is also a fave.

Anything I cull because I seem to be the only one aware of how limited space is in this house, gets adopted by one of my parents before it hits the bin or the roadside bring out your dead collection. At a time when I've switched to kindle and iBooks because we just can't keep accumulating books, my parents have stopped going to the library and are bringing in hundreds of books they've purchased and are mounting up in the house like I can't describe. They NEVER bought books all my life, only read for free from the library, but now apparently is the time to be fast and loose with the money! As long as its for fun things and not helpful things like I don't know home maintenance and getting a handyman.

Dad, in my opinion, is about ready to lose his key privileges. Its hard to say that to a parent, but honestly the number of alarmed searches for vital keys he has lost is getting to be too much. We have spares, but we don't want his keys falling into the wrong hands.

I'm not sure how long Mum will continue to drive for, though at least our lives improved in one significant way last year, and that was my parents were assessed and approved for subsidised gardening help and driving - since I don't drive at all, they really need that help getting to out of town medical appointments. Dear God, the medical appointments alone are never ending and overwhelming.

And somewhere, amid all this screaming, I manage to run my business, Starzyia, and perhaps haven't completely lost my mind!


Sunday, July 12, 2015

every day is Freaky Friday, role reversals in the parent child relationship


There comes a time in life, when the parent - child relationship gets reversed somewhat, the extent of this depends on so many variables, but to a degree I'm sure you have experienced or witnessed grown adults who become protective of their parents - worrying about safety, worrying about health, advising, even "laying down the law".

My parents seem so innocent and gullible to me now. I have to tell them the people who ring them and say "I'm from Microsoft, please turn on your computer and login we've detected a massive threat to your computer" are lying scumbags from hell, and that its absolutely okay to yell at them "you are a fucking criminal ass wipe" and then hang up.

I have to practically tie my father to a chair to stop him from doing jobs he should not be doing, and that he promised me many times he will no longer do. After every heart valve replacement, and every code blue, broken hip, and hernia I have held him in front of me and looked deeply into his eyes and said "you cannot do any more hard work, you cannot chop firewood anymore or saw logs, or dig the edge of the garden beds to keep the front lawn from invading" and he has looked me in the eye and said "oh no, I won't do that anymore" and he has broken that promise one thousand times (or more)

Now I'm the one making sure Dad doesn't leave his jacket, walking stick, or cushion on the train.

I'm the one who checks the house is locked at night, or finds the keys when he's lost them, or thaws the 2 litres of soup out after someone has accidentally put it in the freezer instead of the fridge.

But this is the tip of the iceberg, these are the issues everyone talks about, but there's so much more, and I'm your girl, I'm the one who is prepared to say there are other ways that the relationship is reversed with age.

Because your parents are most likely the people who taught you the most about certain things. Like hygeine, and manners, and how to behave in public, and you've finally mastered all these things, and now they are unmastering them before your very eyes!

The woman who taught me not to pick my nose is the woman I walk in to find in up to her elbows while watching television, and I have caught my father using the car immobiliser lock to pick ear wax out of his ear, at the dinner table.

This is Freaky Friday, Twilight Zone, weirdness. Laughter is just about the only option. The others are nausea, outrage, and wondering how the hell your life turned out this way.

It is so weird to find out your parent's social skills include tantrums that the most devilish two year old would be proud to call their own, as well as the occasional bout of silent treatment, passive aggression, and deliberate property destruction.

Not to mention the faux pas. Oh my God, you will overhear so many terrible, terrible things. 

Listening to my father on the telephone is like Verbal Waterboarding. He could patent it. I am absolutely beside myself at times, but now I really try to find something to do well out of earshot as a measure of self preservation.

And if you are considering being any part of your parent's lives as they become elderly, you will need to find ways to cope as well. My recommendation is to become inured to it - let it be like water off a duck's back, accept it for what it is.... and treasure the lighter moments because they become precious memories.

Friday, July 3, 2015

a typical day in the nest

Morning has broken - my mother will rise and turn the television on by 7am and it will remain on until bed time. I hate television.

I squabble with the dog all the way around the block - he is afraid of an increasingly inconvenient list of things  all of which can be found in our 'hood or flying overhead (drug houses, airforce jets, small poodles, eagles, strange smells, hoon drivers, the rubbish truck) we tend to go the direction he decides moment by moment, is less threatening, and usually end up stranded with no "safe" Fizzy approved way of getting home.

While my parents breakfast at a table that had been almost completely set after dinner the night before (tablecloth, cups, saucers, bowls, cutlery, cereal... basically everything but milk and the teapot) I rush to the computer because my first thought is whether any orders have come in for my business Starzyia overnight, or if I have any customer questions to respond to, I love this!

I lovingly wrap any orders for my customers so I can ship them when I go to the shops, which is early, but fits around any doctors appointments my parents might have.

We shop or run errands.... if Dad comes there is a walker to collapse and shove into the boot and he likes to do it himself (which takes 50 times as long as if I did it but its better if I stand back and let him do it himself while I cop dirty looks from passers by at the sight of an 80 year old struggling to lift a walker into or out of a car while I stand doing basically nothing)

No matter the size of my "to do" list compared to the size of their lists, I will always, always be the one waiting for my parents. Its impossibly freakish the way it turns out. I play games on my ipod while waiting. Sometimes I wait so long I worry they have forgotten where we said we'd meet and agonize over whether I should look for them at one of our other meeting places. Sometimes I wonder if at least one of them has collapsed in the centre and I can't understand any of the PA announcements in the mall.... its all gibberish. I could be getting paged and I wouldn't know.

My father who recently passed his driving test to remain on the roads, will insist on driving and will quite roughly hit the curbs at least once there and back. It makes me incredibly nervous when he checks his wrist watch while driving, fails to register the time, and looks about three more times before asking me what time I think it is. Why time is important I don't know, none of us have anywhere to be in life, really. Though I think about Hawaii quite often.


After unpacking any shopping, I have to take the dog out at least to the park (3 houses down) or to the end of the street because he absolutely will not take a crap in our yard, though my life would be much easier if he would. He likes to do it in the 'hood to mark his territory. He is submissive to every other dog in the world but he can fake a good confident "this is mine" poo, I think, I'm only guessing.

At least once a day the phone will ring and my dad will answer it even though he cannot hear anything on the phone, and usually ends up hanging up because he couldn't understand the person's accent, or if the person is lucky, he will come and grab either Mum or myself to get to the bottom of what is going on.

At least once a day the phone will ring and my mum will hang up summarily on the person, because when she said "hello" they didn't say "hello" back right away which she believes is 100% proof that the person is in a call centre. They might just be a medical receptionist distracted mid ring by a patient or other staff member or any number of other legitimate callers who have just been given the Short Shrift.

I hardly ever answer the phone. I'm the one who can hear, does understand, doesn't abuse a call centre person until they've earned it, but I HATE phone calls.

Lunch time! I eat in my room while watching an episode of whatever show I'm binge watching on dvd.

After lunch I either: create new products; conduct photo shoots; write blog articles or my email for my VIP members; update bookkeeping; unpack supplies parcels; shop for supplies online; or when it hasn't been achieved in the morning - housework or garden and yard tasks my parents can't do.



At least once every hour while they are awake, my parents have a bickering match that begins over not being able to hear or understand each other and sometimes I have caught them arguing the exact same side of an issue only in different words and not comprehending that they are actually in complete agreement with each other. I face plant.

Nearly every day I will be actively involved in a dispute with one or both of my parents, in which I am treated incredibly rudely, and let's face it, I'm not one to cope well with being treated unfairly. Because of the way I was treated by my father as a child, I refuse to take abuse from him now. So when I call him on his current behaviour.... which I call "holding a mirror up" things tend to go badly. My intention is to show him how he has just treated me, but being unable to perceive that in the first instance, he still cannot detect it when it has been replayed for him. Its the biggest emotional void in my day and is one of the things I have to work on letting go of. But it sucks that I have to let go.

There's usually no way in hell I can get access to one of the toilets when I need it, because since Mum had bowel cancer she has had irritable bowel syndrome, and Dad has heaps of troubles himself. He will usually crap in the bathroom in the morning when I want to clean my teeth. Then Mum does it. Then Dad does it again. There is always spare underwear and a plastic bag in the car glove box. Unless I go to consult the map and the underwear is no longer spare... Eww!!!

Dad likes my cooking, mum does not, plus Mum can no longer eat foods that contain fructose since her bowel surgery. I don't like Mum's cooking (and never have) and don't want to kiss goodbye to so many gorgeous fruits and vegetables, plus I don't really eat meat... so every day there are two dinners prepared in our house. But not at the same time because the kitchen is too small. So I often cook early in the day and reheat for dinner. If I'm smart and cook for 4, I can get by having a day off in between cooking, and have a hot lunch and hot dinner every day. I buy my own groceries and only make the things I like, so its pretty good.


I come home from walking the dog to potent mixed aromas - Deep Heat and gravy would be one of my least favourite combinations (considering I hate both, and together, forget about it!) Whatever the smells are that day, they are bound to clash with the smell of my dinner.... and again, I eat alone in my room. Separate meals, at separate times (I can't force myself to eat dinner at 4.30-5pm every day anyway) this is the most independent part of my day.... the closest I come to living alone.

The dishes are washed and put away, the table is set for the morning, and I work on Starzyia tasks until 7.30 which is my designated computer shut down time. Relaxation begins and the dog loves his cuddles on the bed while we watch an episode or two on dvd.

A basic day in the nest! There are lot of things that are the same each day, but the variations are insane - the actual subject of any bickering match is sure to be one for the record books. I hate the tension, I like peace and quiet, but as long as we are having insane arguments and getting in bizarre predicaments I figure I might as well treasure them as the uniquely hysterical hilarious moments of our lives. There will be plenty of them. I hope they make you smile.

Thursday, June 25, 2015

Introduction to Strange Nest - who we are and how we live

I'm Starry, young, fun, and single.... and living with my elderly parents in what I refer to as "an interesting social experiment"

Our nest is strange, it is cramped, one of the birds is deaf, we're all cracked.


I've been dealing with the huge age differences in our family for as long as I can remember. My parents were middle aged when I was born, senior citizens when I was in university, and elderly when I was in my twenties. 


At first my twenties were awesome - I lived in my family home solo while my parents went grey nomading. Paradise! But health statuses change, and I started to share the home with my parents, which was weird at first, plus its socially awkward admitting that you live with your parents but our mindset has begun to change and we see living as a team as a really smart option. As a team we are stronger and more financially stable. I'm not a mooch, I pay my way, I do the tasks they can't do, I avoid the rent crisis, they get to stay in their home for as long as possible (hopefully the rest of their lives).

To succeed as a family we have to reinvent our existing family dynamic. If you've got older parents, you know what I mean - at a certain age you parent them.... but they don't like it. And it gets tense. They need to see me as an adult, and understand it is not usual for me to live like this. I need to understand that their abilities are changing, and that it is still their nest and I'm the guest (who can be addressed far more rudely than you'd ever entertain speaking to a real guest)

If you want an idea of what its like to look after aging parents, or you're trying to decide if you can cope with bringing your parents into your own home, this is probably the blog for you - you'll get plenty of insight here, and solidarity too. Sometimes the most important part of coping is having someone you can let off steam with. Plus sometimes you will laugh until you cry.

At the core of this experiment, is my belief that family is one of the greatest blessings but also the biggest trial a person faces in their life.

I hope our concept of "living as a team" prevails over our trials. But even failure can be fascinating (people are still intrigued by the Titanic, after all)

So behold... our experimental lives!